[gina66]

I was positive with Parvovirus infection, blood clotting (protein C is positive), also 2-3 % abnormal monoclonal B cells based on bone marrow biopsy. I have been getting blood transfusion since I was hospitalized in ICU unit for low hemoglobin (2.8). Prednisone was not working due to infection from Parvo. Infection was negative after IVIG treatment for 3 days since June 2012. Still my hemoglobin goes down, reticulocyte count way below normal, still having blood clotting although my platelets count was just a little bit higher than normal level. I tried Cyclosporine, 300 mg/day but it built up in a month that I had toxicity signs and symptoms. I stopped taking it. Last Sept 2012, I had negative PET scan test result. Doctors were thinking about prescribing Rituximab or the other chemo pill but decided I should try Cyclosporine again in a less dosage, 100 mg/day. Tried Cyclosporine for more mos., no progress with my hemoglobin.