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Old Sun Oct 14, 2012, 02:41 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Because of your Parvo, I'm going to mention three doctors. I go to two of them, and they are great. Your doctors seem to have a good handle on this, but my experience is that PRCA is so complicated, that it is a good idea to get a second or third opinion. Even the autoimmune kind is slowly being believed to be part of another illness.

Locally in Dallas, I go to Dr. Cynthia Rutherford at UT Southwestern. She is very experienced in these anemias. I am her only current PRCA patient, but she has had others in the past. I know from conversations I have had with her that she has a special interest in the parvo aspect.

I also go twice a year to Dr. Jaroslaw P. Maciejewski at the Cleveland Clinic. He is mostly a researcher, and only schedules patients on Wednesdays. He has a special interest in PRCA and has had 26 patients the last time I asked him. Here is some detailed information on him. He is also a really nice guy, and will take a personal interest in you. He recently received a $1.9 million grant to study all of the bone marrow diseases to see if they are caused by specific viruses. There are thousands of possible viruses.
http://my.clevelandclinic.org/staff_...?DoctorID=4362

Neal Young, M.D.
National Institutes of Health
is the one I mentioned. Here is some some recent info on him.
http://servicetoamericamedals.org/SA...12_young.shtml
He is difficult to see, but it may be possible to see others at NIH.

I can expand on all of what I have given you if you want. I will also give you my name either as a PM message on this site or by email if you need some sort of referral reference.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/

Last edited by triumphe64 : Sun Oct 14, 2012 at 02:57 PM.
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