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Ryan,
It probably works both ways. People who have had a less-than-good experience may not want to worry others or may be too busy trying to manage their own health. People with a good experience may not want to give others false expectations or may have put it all behind them. Some people naturally share more than others. And since these are life-threatening diseases, some patients don't survive to tell us their stories.
We get a skewed view in these forums for other reasons too. It's an English-based site so we hear mostly from those in Australia, Canada, the U.K. and the U.S., with some notable exceptions. And forum members, like those who post their stories at other websites, tend to be the more proactive patients and caregivers. I tend to think they do better overall than those we never hear from.
So it's a concern, but there's not much we can do about it. It's worth reminding ourselves that personal stories can give you a first-hand look at ATG and other patient experiences but they aren't a statistical sample that you can use to predict how your own situation will turn out.
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