Hi all:
I just wanted to get your opinion on this - I was diagnosed with severe aplastic anemia in September 2007, underwent ATG with subsequent Tacrolimus therapy at UCSF in early October and showed no response until now...July 2008??!! I went off the Tacrolimus and all the prophylaxis medications after 6-months of treatment since I was a non-responder, retreatment with ATG or cyclophosphamide treatment was discussed or possible MUD BMT (2 possible 9/10 matches) and I decided to wait it out. I am currently 3-weeks without platelet transfusion (before it was once/week) and RBCs (my HCT is 32.2, usually hangs in the low 20s after 3-weeks). Could this be an early sign of remission?
Hope you all are doing well and if you are in the 'early stages', everyone's advice is true, just be patient and hang in there
Michelle