Hello Birgitta and Mcgill54,
It's good to hear about those platelet responses.
Birgitta, I'm glad to hear that you have had a great response to thalidomide. I wonder how it works? Does it decrease fibrosis or have you had another BMB to see? Of course, I'm sure you haven't if you have been doing so well
. Has your ferritin decreased since you haven't needed transfusions? I'm sure you would like to get off the iron chelator? McGill54, thanks for reporting in on your response to Nplate. I'm so glad that you've had a good response so far. I certainly can identify with the tendency to micromanage, as I do also. I think it is important to "be on top of things" to prevent errors but can certainly understand other patients who just want to trust that their doctor will do what is right. Continued good luck to the both of you.