thank you for responding. It's so uplifting when we help each other. My onco isn't keen on giving me vidaza or decagon. He explained that it would only cause more complications, but I will bring it up again when I see him next week. He is very good for and with me because of his openness, concern and truthfulness. This is important to me because I was an RN in my younger years but still have to know about everything.
I am a young 72 years and was dx with -5q low risk MDS two years ago. I was on revlimid for 18 months which raised my rbc but then suddenly lower my neutrifil count to .5 and my rbc to 7.2 my other counts are ok. I currently receive prbc every 3 wks but my onco feels that it may change to every 2 weeks. this is ok with me as long as I can still go out during daylight and don't grow any fangs. my thoughts and prayers will be with from here on in. jay
