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jayc
Greg is certainly right. Many MDS patients have a local HemOnc and also a specialist. Our specialist is at Mayo Clinic in AZ and we travel there every so often to discuss the treatment plan. The local Dr. then puts it into action and shares the test results with AZ on a monthly basis unless there is an immediate issue. And no, they don't always agree but the specialist wins. His life is dedicated to this disease and he knows his stuff. I really like our local Dr. but he doesn't know enough about this specific illness and its many different types. We all work together as a team to make the right decisions for the best outcome.
Knowing we take a proactive approach gives us peace of mind. We can't change the illness but we can change how we deal with it. You can too!
Liz & Bob
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Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade
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