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Hi Jayc,
I too have Del 5q and was just wondering when you had your last bone marrow biopsy? I have one every six months due to not reaching cytogenic remission. If you haven't had one since diagnosis then you may need to have one to check if you have any additional deletions to other genes. Your diagnosis and treatment options would be very different then. There is also some research out there that states that Revlimid can be effective again by having some time off the drug. I'm sure I saw this information in the MDS Beacon (Facebook page). I will try and find the article for you.
Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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