Deb and Honey
thank you both , yes I do feel everyone's love and support and it is uplifting. At the onset of my dx I did seek out all resources , especially financial since that plays a great part in my life right now. I do not qualify for Medicaid, which funds a lot of different aids, however medicare did pay for my revlimid for 18months which is extremely expensive. they also pay for my prbc transfusions. very very grateful for these. My hemo onco works with the specialist I went to see for a second opinion. He is on the excellence list of MDS foundation so I feel confident with both doctors but not enough to keep me from doing my own research and praying.
My mds doctor knows my financial situation and had his social worker research with me. Nothing found out there that I didn't already seek. Part of my job I had before I had to retire was to help connect people of need with the proper helping agencies so I was a little ahead of the game there.
I am in public housing at this time after selling my home to pay med bills but I still fall between the cracks for other helps. The gov has been good to me so I really will not complain. I am still able to care for myself in every way but much more limited in energy as you all know. I live alone but know that my children who live nearby will help when needed (unable financially)
I like to stay independent as long as possible, it keeps me a young 72.
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