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Hi Mark,
It's Susan from the other site. Funny, the other day I posted questions here asking about Campath and Zenapax. Dr Mac also mentioneed Zenapax to me as a last resort option, IF I ever need it. I like to be in the know well ahead of time. I hate not knowing what my options are.. One person posted here about a terrible experience with Campath. I'd go to NIH/Dr Young for a consult and get 3 PNH specialist opinions & do literature searches before doing either. Zenapaz May be better, but just starting to check it out.
I'm here because my platelets and wbc have been trending steadily down for a year. I began with AA & it's coming back. Still good enough counts for time being. Will see if I can attend your event in November! Be sure to let the other site know you are only fundraising for others this year. They are more likely to get involved, that was not clear on the website when I last looked. You and your friends are amazing to help fund research. Thank you.
suz
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AA/PNH Dx 1998, Warfarin, Soliris
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