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Old Thu Sep 27, 2007, 09:48 AM
marc marc is offline
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Join Date: Apr 2006
Location: Aurora, IL
Posts: 11
Hi Susan,
Good to hear from you. Please let me know if you hear anything more regarding Campath or Zenapax and I will do the same as I get more info.

For the benefit, I have revised the site since the original benefit. It now talks about how the benefit is strictly to raise money for other PNH/AA people and research organizations in the mission statement and the description of the benefit. I also specified this on the post on the other site. Please let me know if I need to make it clearer or if it seems misleading. I certainly don't want people to think this is to raise money for me.

I hope that your counts start rebounding and that you are feeling well. I also hope you can make the benefit. Please let me know as we are not asking donations from PNH/AA patients who attend. We just want you to come out and have a great time.

Marc
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Marc, Severe AA and PNH; diagnosed April 2006; Treated with ATG, currently taking Soliris
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