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Hi there,
Sorry to hear that your son is having to deal with this awful disease. My son was diagnosed with AA in November 2007 at the age of 10. He was a non-responder to ATG and went on to have a successful unrelated BMT in June 2008. We were very lucky as we went from diagnosis to full recovery in 13-14 months. Evan's complete journal start to finish is linked below. Feel free to visit. This disease is successfully conquered all of the time, keep the faith!
My son would get bone/joint pain in the months after his ATG treatment, but I first attributed that to serum sickness, despite being on prednisone. When it continued, I attributed it to marrow stimulation, especially because he was on G-CSF injections to artificially raise his ANC.
You are right not to give your son any extra iron at this time. He'll be getting more than his body can use through the red cell transfusions.
You have found extended family here. This forum was one of my life lines during our time with AA.
Best wishes for complete return of health to your boy,
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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