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since nobody else has responded, i thought i would take a shot. if you are not getting what you need from your current team, it may be time to find a new one, or at least get 2nd or 3rd opinions. with aa, there are several drug treatment options available. also, i have seen a couple of forum members who went through a second transplant with success. don't give up, and remember that you are frequently your best advocate when it comes to getting medical care.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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