Oh Linda, it is so sad to hear about the problems you had while visiting Moffitt, as if you don't have enough to deal with already. 6:45 a.m. labs, so very early.
It is good news that you were able to see the doctor right away, you needed something to go right, that's for sure.
Hopefully with the new oncologist and working together with Moffitt, you and Al will now be able to concentrate on his health and taking care of his MDS.
Four weeks ago Dean was in the hospital, all of his counts were extremely low, his WBC was 0.3 and his platelets were 3. When Dean found out his diagnosis of MDS six weeks ago, his BMB showed blasts of 17%.
Four weeks later, after Dean's second cycle on Dacogen, his WBC and platelets are within the normal range. WBC 6.0 and PLTS 180, his blood work today.
We spoke to the nurse today that was taking care of Dean in the cancer center, she said Dean's oncologist works together with Moffitt, and he has sent some of his patients that were not improving to them for treatment. The nurse use to work for Moffitt and said they are the place you want to be when you are facing the challenges of this disease.
Thank you so much for taking the time to update everyone on your visit to Moffitt. I wish it would have been better. Dean and I will keep you and Al in our prayers, and especially pray that you will receive good news regarding the results of his BMB.
Dean had his PICC line removed last week, so he is getting poked like Al. His doctor wants a port for Dean within the next few weeks, definitely before his next cycle with Dacogen. We didn't think about asking Dean's cardiologist, fortunately he has a six month check up with his cardiologist next week, we will also ask him about the port.
You are always in our thoughts.
God Bless and lots of hugs are being sent to you and Al.