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Old Tue Aug 30, 2016, 02:34 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Has Anyone Attended Any Nord Pnh Meetings In 2016?

So has anyone on this forum attended any NORD PNH meetings in 2016. I have been to a few of them, and I may attend the Seattle meeting next month. I have no idea if anyone that has attended any meeting that I have been to frequents this site. I was just wondering. The link is here.

http://rarediseases.org/pnh_2016/

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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