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Old Thu Dec 31, 2015, 10:39 AM
traceyn11 traceyn11 is offline
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Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Thanks DanL - good advice. I don't really feel either of the transfusions took since less than a week later I was back at 14k. The only other time I had platelets was before my colostomy surgery.

I have been totally frustrated with the ER every time I go there. No one seems to know what neutropenic precautions are other than banning most fresh fruit and veggies and no flowers in the room. Sometimes they wear masks in the room and sometimes they wear gloves. So when I go, I always wear my mask and leave it on the entire time. Occasionally I might get a dr that has some knowledge of MDS. Unfortunately, the on call drs and home health nurses are trained to just tell you to go to the ER. That's how I ended up there for 3 hours for a picc line declotting.

Thanks, I am both scared and ready for the transplant at the same time.
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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