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Old Mon May 16, 2016, 05:15 PM
Annettec Annettec is offline
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Join Date: Feb 2015
Location: New Brunswick Canada
Posts: 50
Need help to understand this next step....

My mother has been dealing with MDS high risk for 2 years exactly..... She is now 79 yrs old and while VIDAZA helped to keep AML at bay...it is no longer effective. I suspect her oncologist will discontinue treatment next month. She has been transfusion dependent for a year ( every 1-2 weeks now....) and as of today, she now needs platelets as well..... We don't know what's happening with her blasts as she has not had a BMB in the past 12 months.

What should we expect now? If she needs platelets this week, does that mean she will now require platelets from here on out? I keep hoping that once they stop treatments that she'll be able to have more time with supportive care ( weekly transfusions) or does this mean the end is near? Not ready to lose my mom.....😢

I so want to be able to support her as much as possible but don't know what to do.... Would appreciate advice.

Tks everyone,
Annette
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