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Old Sat May 24, 2014, 04:25 PM
kyis kyis is offline
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Join Date: Jun 2013
Location: Marin, California
Posts: 56
Ray congratulations,
I think this is remarkable news for you considering only 2 weeks have gone by.
At this point if it were me it would just be to early to know and I would follow my doctors. Pretty uncharted waters I would think.
How often will they be performing bmb's and blood work?
Please keep us up to date on your progress.

Here is clinical trials # if anyone wants to look it up. NCT01915498
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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