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Cheryl C,
You bring up an interesting point of when to have the transplant and weighing the risks. In my situation the plan is to get me into the best health possible and at that time have the transplant, rather than waiting until the numbers turn negative (which they will). I have responded very well to the Vidaza and almost all counts are now in the normal range. The problem seems to be that for most people those counts can quickly turn to the abnormal range. It is a tough call with no certainties whichever call a person makes. Such is the life of MDS.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Last edited by bailie : Sun May 25, 2014 at 07:22 PM.
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