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Dacogen
Sarah,
MDS comes in many forms, and none of us are the same. I received Dacogen beginning in September, 2008 and discontinued in February, 2009. My only suggestion to you is that you follow this forum closely. Most of us have experiences that are simular, but may yet be vastly different. Our health conditions, age, and tolerance of drugs all help us make informed decisions.
My best advice at this point is to not be afraid to question treatment plans, ask for a second opinion, and always know that the patient has rights to ask.
My best to you and your grandfather. I am open to private messages by e-mail if anyone desires to write.
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