Thread: Multi-Vitamin??
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Old Tue Feb 17, 2009, 06:16 PM
Vera W Vera W is offline
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Join Date: Jan 2009
Location: Colfax Ca
Posts: 152
Thoughts on vitamins and things

It has been so hard with this vitamin/supplement thing . It seems that the first thing all the friends and family want to do is set you up with the supplement program and they really believe that they can cure you. My chiropractor wants me to take all kinds of things... I took these things for years, I still got MDS. I told some one recently that it is not that I am unhealthy it is just that my body is making unhealthy cells.I have moderately increased iron (according to my bmb) and I still take vitamin with minerals. My "iron box" regular blood test was normal. Anyway..My doctor told me vitamins were OK but to avoid everything. No green tea, no herbal remedies, no glucosamine condroitin, fish oils, shark oils etc etc I guess it hasn't hurt me, my counts are good.
Nancy, I have RAEB II. I have no chromosome abnormalities and I have needed no transfusions or blood products.My counts are beautiful at the moment (I am on Vidaza injections) and the doctors can't get me in fast enough for a transplant. I had to literally say slow down and let me figure this out. They told me Do not wait. I think finding a perfect match changed my mind since my only brother was a bad match. I don't want to take chances with this thing getting worse. I have also said that it's the devil you know and the devil you don't know. It gets confusing but I have to keep a mind set or I will go crazy! I appreciate everyone's input.
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Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09
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