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Hi Lynn
So sorry to hear about your setback. I was aware that Valproic Acid was given for treatment of Seizures and Migraine headache I had not heard of it being used in treatment of MDS. When I saw Sunnybrook I thought of Toronto and Lawrence Park where I grew up. I now reside just outside Calgary and was diagnosed with MDS in 2012 and started Vidaza in April 2017. Will start my 21 cycle in 2 weeks. Have had no transfusions and self inject Eprex once a week to help keep Hgl respectful. My CBC is now usually about the same as when I was diagnosed. Last Bone Marrow showed Basts at 3% down from 6%. Major symptoms are tiring easily with profuse sweating. Would appear you are young enough to consider BMC. I am well past that point but am in great shape compared to many who take part in this forum and am thankful for each day I get to fight this disease.. the best of luck to you and keep posting so I can follow your progress.
Last edited by Owen M : Fri Oct 19, 2018 at 01:41 PM.
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