Thread: In memoriam
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Old Sun Sep 22, 2013, 12:34 AM
Honeybun Honeybun is offline
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Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
In memoriam

Hi Neil

I have a suggestion to put a section on your website to honour those members who have passed. It is not supposed to be morbid, but a place which could be used to inform others if someone has passed, a little about the person such as their age, type of MDS etc, and story, and especially a place where others can post their sympathies and memories of the member. Some I can see are close or have met.

I have nearly had foot in mouth wishing someone well, in an old post, only to find out later reading through another post that they had passed, as some notices about someone's passing is put in an unrelated post. It is also useful for some that may have been away from the forums for an amount of time or newbies.

I think those that battle this disease deserve their own acknowledgement and place to celebrate their life.

What do you think and members think? Again it is not supposed to be morbid or scary for those going through this process.

Honey
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Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
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