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Also Laura,
Your MCV is high indicating macrocytic anemia. Vitamin B12 deficience can cause this as can bone marrow graft failure. IMO, you absolutely, one way or the other, NEED to get your Vit B12 level up ASAP. Doing this orally with your gut dysfunction I don't think is going to work so maybe prednisone and big B12 injections may do the trick to raise platelets and prevent hematomas from the injections that you very desperately need.
You have got to find a doc who will order the B12 as IM or SC injections, I think. Maybe Dana Farber can do that?
Trying to think this through...
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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