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Old Sat Mar 6, 2010, 02:56 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Desferal

Hi Pat,
I got my port-a-cath Jan 2007 and the first months it was only used for transfusions. Aug 2007 after 40 units of packed RBCs I started with Desferal. You can find a picture of the small home pump at page 4 in this article:
http://www.cooleysanemia.org/updates/pdf/July2003.pdf

Now I have received 41 Desferal infusions in my port-a-cath during 4 days in connection with transfusions.

I bled a lot when i got the port-a-cath because I have low and dysfunctional platelets (I did get cyclocaprone during 5 days and a platelet transfusion without much effect). Otherwise there hasn't been any problems like infections though I have had very low neutrophils twice. I don't feel the Desferal infusion at all.

Hope you will be able to get Desferal infusions via a port .
Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent from dx, Desferal and Exjade for iron overload and 2 Neupogen injections/week for low WBCs.
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