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Old Sat Jan 3, 2015, 03:22 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Suz,

My mother has tried several doses of epo, upto 60,000 per week. No rash or side effect, but no positive effect on Hb either.

Maybe you can try changing the brand, in case that works.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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