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Old Sun Aug 30, 2015, 06:55 PM
edithr edithr is offline
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Join Date: Feb 2011
Location: 30 mi West of Cleveland
Posts: 86
David - thank you for thinking of us and keeping us updated. I'm not sure of my tone will come through in this post, but BORING is UNDERRATED! Love, love, love that nothing seems to change for you. I mean that in a good way.

Do they do bone marrow biopsies on you? Who determines how often you should go for bloodwork? Have you considered that this just might be your normal?
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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