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Old Tue Apr 12, 2016, 05:31 PM
David M David M is offline
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Join Date: Sep 2009
Location: Fayetteville, TN
Posts: 89
Hmmmmm...

Well, I guess I am not educated enough at this point to know exactly what all that means. (ha) But there are people on this forum who I know can "interpret" that information. (If no one responds to this post with an explanation, you might post a question to one of the forums and I'm sure someone would explain all of that.)

The good news is, it sounds like things are stable for you at the moment. This gives you a good opportunity to learn about Bone Marrow Failure in its various forms (if you wish) and to think about options going forward. Some people's counts crash overnight and they don't have the luxury of time. Things like finding a good doctor (or doctors) is an important thing to do. Most doctors have little or no experience with this sort of thing -- although they may not volunteer to send you on to a specialist that DOES have experience with it (you may have to take the initiative in this case and find your own specialist/facility you are comfortable with). This is a good time to do that kind of thing.

There are a few of us on the forum that have had many years of "watching and waiting." I wish I didn't have this blood problem -- it is always in the back of my mind -- but I will say that it has helped me appreciate and value life more. Each day truly is a gift!

Feel free to contact me anytime you would like to compare notes, concerns, stories, etc., and I'll tell you what I know... which may not be much. But at least it is good to have someone to talk to who is going thru something similar!
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David M, reds/whites/plats slowly declining since 2000; hypo-cellular bone marrow; diagnosed Mild AA; low counts, but stable since 2009; watch and wait -- no treatments required to this point.
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