|
Hi David - I'm another stable, 'watch and wait' forum member. After 6 years with chronic idiopathic neutropenia followed by nearly 5 years since my MDS diagnosis, I can agree that it's possible to live a very normal life with lowish blood counts.
Yesterday I hiked 12 km with my son and grandson. Because things can change so suddenly with MDS, whenever I get that kind of opportunity I think, "Maybe this is the last time I'll be able to do this," so I go ahead, even though I know I'll be tired afterwards. How fortunate I am! Like you, I thank God every day that I wake up feeling well.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
|