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Old Tue Jul 23, 2019, 06:24 AM
JoMac53 JoMac53 is offline
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Join Date: Sep 2017
Posts: 75
Refractory to platelet transfusions

I have become refractory to platelet transfusions. After three consecutive units my count is at 6, down 1 from before the transfusions. They sent my blood samples to the world blood bank for HLA typing and some other type of test, I can't remember the name of right now.

Anyone have knowledge or experience of a positive nature to share?


I could really use prayers, too, this is really scary.

Thanks. Jo
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Joanne, 65F, 8/17 dx Primary MDS-EB1, Pancytopenia; 6/19 MPN w/CMML characteristics, dr calling it AML even w/blasts <20%; 7/19 Induction w/Vyxeos resulting in complete remission with incomplete blood count recovery.
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