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Old Tue Sep 30, 2008, 01:34 AM
Hawaii Bill Hawaii Bill is offline
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Join Date: Jun 2008
Location: Waikele Hawaii
Posts: 100
Thank You!

Wow, thank you for all the information!

Based on Birgitta-A's post, it seems like it would be a good idea to start the desferal right from the beginning in some or many cases of AA. (Is it the cost of the medicine and insurance companies that causes this???)

I feel that I am getting a late start on it, and it's only because Dr Paquette at UCLA made a point of it in his evaluation that I was even made aware of it.

btw, my hemo checked out Exjade and said that one of its side effects is decreased blood counts, so that was out for me.

I gave myself Neupogen shots in the belly for a couple of months after my ATG treatment, and had no problems with it, luckily. Poking myself the very first time was the hardest part!

Thanks again for the info! This board is great!
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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