Quote:
Originally Posted by Hawaii Bill
Wow, thank you for all the information!
Based on Birgitta-A's post, it seems like it would be a good idea to start the desferal right from the beginning in some or many cases of AA. (Is it the cost of the medicine and insurance companies that causes this???)
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With both Exjade and Desferral, you need to have an excess of iron in your system. Chelating with normal or just slightly elevated levels is risky in it increases the probability you'll experience the hearing/visual side effects mentioned in the drug leaflet. Both drugs do not recommend starting therapy until FE is at 1000. And with Exjade, they recommend stopping it when your FE is at 500 for three consecutive readings. You can also adjust the dose down when your FE is lower to avoid side effects. Before starting, you should get a baseline hearing and vision check and then follow up yearly to make sure there's no damage.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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