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Old Mon Jan 2, 2012, 09:54 PM
Susan Susan is offline
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Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
Include Other Conditions Making Things Worse

I was approved after only 2 mos but for PNH/AA. I made sure my doctors knew of my increasing fatigue, weakness and shortness of breath, documented it in file well before applying. Gave my hem a list of all symptoms, what can't do that could do before.

For me, asthma and another lung condition make my symtoms worse. Added my osteoporosis from long term Prednisone for good measure plus osteoarthritis, anything that slows me down. Included Depression, feeling overwhelmed, and was seen few times pre-app, and since. Explained not enough energy to clean house, etc and husband cooks. Last PNH consult letter mentioned forgetfulness, "flight of thought." All hospital addmissions in last 2 yrs impt to add.

I did use a lawyer definitely speeded up the process. Hospital scoial worker said not nessecary. Surpirsed, SSD approved back to a yr and a half prior.
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AA/PNH Dx 1998, Warfarin, Soliris
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