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<<Also, I am wondering if it's worth seeking a second opinion? MDS seems quite a complicated condition. I am wondering if it's worth finding a hematologist/oncologist who is an MDS specialist?<<
Yes. Like Birgitta said. This is most important. Most general hematologists see a few MDS patients whereas the specialists see MANY. My hematologist sent me to a more specialized hematology expert that sees a lot of MDS patients.
Typically with Bone marrow biopsy there's an accompanying cytogenetic report. This is important in knowing what kind of MDS your dad has and the severity.
His other cell counts, White Blood cells and platelets are important to know as well.
9.5 HG isn't severe anemia so that's encouraging. He hasn't needed blood transfusions that's encouraging.
I've had 6 rounds of Vidaza and the first round left me tired and my White blood cells dropped but then they rose and the other rounds haven't been bad.
Like Birgitta was saying Vidaza tends to lower your counts at first including the WBC's that fight infection so be on the lookout for that. When your dads blood is tested they'll know what to do.
All the best.
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