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Old Mon Oct 21, 2013, 01:47 PM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
Hi Sidhartha,

You asked if a second opinion is a good idea. I believe so...I also think that if possible, being treated by a Hematologist that specializes in MDS is the best option or at least a doctor whose "specialty" is actually Hematology.

My son is being treated for Aplastic Anemia and the Oncology/Hematology Dr. that treated him for a little while made several bad decisions for him. It wasn't until we found a Dr. who "specialized" in Hematology that things started moving in the right direction. So yes, it does make a big difference. We found out that just because a Dr. may have a license in Hematology does not mean they have the experience especially in a rare blood-disorder disease.

Wishing your dad the best...
__________________
06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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