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Old Sun Jan 26, 2014, 05:08 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
vidaza

Hi Sidhartha,
Your doctor is right when he is trying Vidaza during 6 cycles - most doctors evaluate the effect after 6 cycles.

I Think your dad is responding since his counts 3 or 4 days after a transfusion have gone from 9 to 11.

In the UK they were very late when they approved Vidaza because they think it is expensive.

Your dad has high risk MDS and is 70 y o. He is otherwise healthy. If you were living in the US he could get a stem cell transplantation (SCT) but I suppose that in the UK it is like in Sweden - patients older than 65 don't get a SCT.

There are several drugs in clinical trials for patients when Vidaza isn't working - look at clinical trials gov.

If your dad accepted to see Professor Mufti at Kings College Hospital in London he should be getting the best possible care.
Kind regards
Birgitta-A
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