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Bailie, a BMT was talked about early on but I think the reason it wasn't pursued was because I was in a lower risk MDS group - RCMD Intermediate 1. Although all three counts (Hgb, WBC, and platelets) were very low when I was diagnosed, my BMB showed low blasts (2%) and no chromosome problems. And since I responded so well to the Vidaza, they just kept me on it. It wasn't until my latest biopsy in July of this year that a Trisomy 21 problem was identified. They're now thinking this could be a sign I'm progressing to AML, and since the Vidaza quit too my options are limited. In the interim, I may be starting Revlimid too.
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Mitch, age 60; diagnosed RCMD Intermediate 1 in November 2013, 19 rounds of Vidaza through July 2015 (worked well for about a year); current Hgb 8.1, WBC 2.1, Platelets 29.
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