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AA
Suz - When I was doing some AA research last year, I came across an article written by Dr Maciejewski; I sent him an email asking if he would see me - he responded "sorry - perhaps Neal Young at NIH". I have come across Dr Young's name many times these last 2 years. I know they were both at the conference in Las Vegas. I had intended to go, but relapsed in late June and had to undergo another round of ATG in Houston. By the time of the conference, my counts were so low, I was afraid to travel.
I'm tentatively planning to see if I can get an appointment with Dr Young later this year.
My platelet count hovers around 20 - is that too low for anti-coagulants?
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Loretta diagnosed AA 8-17-05; treated with ATG in Aug 2005 and again in June 2007; currently on cyclosporine. Diagnosed with PNH May 2007; currently on Soliris
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