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Old Sun Dec 9, 2012, 11:41 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Hectorzaza,
You are right when you think your father ought to have more transfusions. The range for hemoglobin for men is 13.5 - 17.5. http://www.mayoclinic.com/health/com...ECTION=results. Different labs can have a little different range.

Your father has probably been treated with an EPO-drug like Aranesp during 4 months without effect. Some patients that don't respond to an EPO-drug alone do respond if they get the combination EPO-drug + Neupogen or a similar drug that stimulates the white blood cells.

A hemoglobin of 4 is far too low - your father can get severe heart symptoms. You have to ask your father for permission to contact his doctor and discuss diagnosis, test results and treatment.

The most important tests are hemoglobin, white blood cells and platelets. Ask for copies of all his test results and save them.
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006, tx dependent since dx due to severe bone marrow fibrosis. Positive results with Thalidomide + Prednisone since 2010
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