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Old Mon Sep 9, 2013, 08:41 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Thanks for the information Travis. So sorry they missed your wife's B12/folate deficiency. It is so important to get a correct diagnosis otherwise, you end up chasing the wrong treatment plan. Long term use of proton pump inhibitors can and do cause nutrient depletion in many and has been overlooked by many doctors as a cause of disease.

I do believe they need to give more attention to nutritional status. The current assessments used by many are inadequate. It takes a while for main stream medicine to adopt more aggressive approaches to diet and nutrition. I think this is partly due to the fact that we haven't fully appreciated the changes taking place in our health due to our modern farming practices and the over reliance on processed, genetically modified foods. Eating a balanced diet no longer equates to good nutrition for many reasons.

Your story reinforces the need to ensure nutrition is a major factor in diagnosing and treating of any disease. Rule out the easy stuff first.

Regarding B12 shots...you may want to consider using the oral methyl form of B12. It's been shown to be equal, if not better to the shots. 1000 to 5000 mcg/day depending on what her B12 levels are now. If you search on B12 and folate/folic acid on this site you will find several threads that have some very in-depth info on it. Generally, the nutrients that play a key role in blood production are B12, folate, B6, copper, iron, zinc and magnesium. Vitamin D is also something to assess.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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