First of all you are entitled to those reports! Next time you go in don't leave until they print every test performed! We went through that too at the first doc... Idk why maybe bc he knew we were leaving. Then keep a binder w each medical. Report it's so helpful! Is thalassemia something that runs in yalls family? Just asking bc there are other forms of anemia that are aquired that cause hemolysis. Does thalassemia effect the bone marrow? Maybe that's where the hypocellularity is coming from? My email is hporter2@me.com
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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