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Hi kazp,
I'm sorry to read that you are back to not having a diagnosis.
This may be a long shot, but have you had any genetic testing done for the things like Schwachman-Diamond Syndrome? Perhaps a pancreatic insufficiency is causing your digestive issues.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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