There are two SAA patients who have had photopherisis after the BMT for GVHD. Here's a link on it:
http://emedicine.medscape.com/article/1131176-overview
Also, on the meds, I would talk to your doc. You may need a smaller dose as a result of the way your body detoxes/processes drugs. I know they can test you to see how well you clear toxins/drugs. It's usually a function of the liver. If you don't clear them normally, then they build up causing more side effects. My husband could not tolerate full doses of Exjade or Desferral. Most doc swill prescribe the "standard" dose and they need to know you cannot handle it and need to work with you on this.
We too have a list drugs that are known to cause problems for John that we need to avoid.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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