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Hi Bossywife - How long ago were the two bone marrow biopsies? If they were dry taps I wonder how good the results were. I was originally diagnosed with RAMD -and later a BMB showed 8% blasts - but they were "patchy" and my hematologist didn't think they were that high - and in a better subsequent biopsy they were much lower... the quality of the sample and the skill of the person analyzing it are both important.
When I was on watch and wait they did BMB's every six months, even if my blood counts weren't terrible - I'd think you'd want a biopsy at least that often - and at least one with a good sample.
There is a balance between getting a transplant too soon - when the risk of dying from the transplant is higher than the potential gain - but it is better to transplant before blasts get higher than 10% - and the healthier the better.
I agree with Bailie, a second opinion maybe from a transplant specialist might be called for...
Best wishes,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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