Thread: So scared
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Old Wed Apr 15, 2015, 01:18 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi dsandrock91,

Did you have a BMB to confirm your AA diagnosis? Did your doctor run a bunch of tests to rule out things like vitamin/mineral deficiencies, heavy metals, parvovirus, hepatitis, AIDs, etc?

AA is a disease of exclusion. There are many things that can mimic it and a diagnosis can not be made without a BMB.

In another post you mentioned that your platelets had gone from 14 (at diagnosis) to 27 now. This is not usually seen with AA without treatment or a transfusion! So, that may be a positive sign that this is something else.

triumphe64 gives some good advice about going to the conference. They are free and you can ask questions of doctors that are experts in the field.

Good luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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