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Old Sun Mar 1, 2015, 05:59 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
HI -

I did Aranesp for a couple of months without responding and then stopped. Six months seems like a long time without response - but I'm certainly no expert. I'm now trying Vidaza after counts started dropping and I started needing transfusions. Don't know yet if that's working. Are you seeing a doctor with expertise/experience with MDS? Best wishes. Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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