Thread: Guillan Barre
View Single Post
  #9  
Old Sun Jan 20, 2019, 02:07 AM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Dan,

It is okay to be mad or saddened by this setback, but this is just a setback and not an ending to your story.

You can recover from this and there are many here rooting for you. Set smaller goals for yoursel and celebrate those victories.

I found this interesting article on the treatment of GBS. Many of the patients described had good success with multiple rounds of IVIG, sometimes in combination with plasma pheresis. It may be worthwhile discussing it with your doctor.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5803090/
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote