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Old Wed Feb 13, 2019, 01:21 AM
Catarina M Catarina M is offline
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Join Date: Feb 2019
Location: Fort Collins, CO, USA
Posts: 2
Thank you for your reply, Marlene. I’m so sorry to hear that your husband has had so many transfusions. I guess I’m just scared of the chemo and the possibility of additional transfusions. Having had only one transfusion thus far, I worry about the risks of transfusions and the multiple side effects of chemo. My hemoglobin runs in the 8-9 range with my Soliris infusions, so the chemo is supposed to reduce that number.

Overall, how was your husband able to manage both chemo and SAA? Did the SAA make his chemo side effects worse?

Again, I’m just nervous and would love to hear how others have dealt with chemo and their blood disorders.

Thanks!
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Dx PNH 2015; treated with Soliris; Hemaglobin runs in the 8-9 range.
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