View Single Post
  #4  
Old Tue Mar 12, 2019, 07:50 PM
Eric 53 Eric 53 is offline
Member
 
Join Date: Mar 2019
Location: Sacramento, CA USA
Posts: 3
Thanks for the insights.
We never did figure out why I wasn't absorbing Iron. In June 2015 my Ferritin levels stabilized and I haven't had Venofer infusion since then. And Ferritin has been stable for close to 4 years now.

I'm going to see my Hematologist from Sutter end of this month. I'm going to get my monthly blood test next week, so I'll see how my Hemoglobin and Neutrophils are doing. It seems I may have to spread myself to additional doctors to see what ideas and options are available to me.

I agree that I want to hold off on Vidaza for as long as reasonable. My current doctor with Dignity suggested that, and I'm a bit concerned that Vidaza is sort of a first option without considering other options. With Neutrophils at 1480 in February, I'm still a few months away from being eligible for therapy to boost WBC and Neutrophils.
__________________
Eric - SWM 66yrs old. Dx Low-Risk MDS in 2010. Currently watching and waiting.
Reply With Quote