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Old Mon Nov 25, 2013, 12:38 PM
sbk007 sbk007 is offline
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Join Date: Apr 2013
Location: NY
Posts: 322
GoingOcean,
MDS has a habit of converting to AML. AML can be put in remission but it invariably comes back. Same with some of the subclasses of MDS. Its possible your doc is telling you your husband had MDS and it transformed to AML before being diagnosed as MDS. The timing as you put it. Its possible for MDS to go unnoticed till its too late. Some people don't have symptoms.
In any case its not easy to relax. Great advise but not easily done.
When you say more than one Dr. told you he's not eligible for transplant but the answers to why not aren't concrete what were the answers? This is important if he wants to go forward with it but a moot point if he doesn't want the SCT. If the doctor gives you bad vibes, doesn't look you in the eye, or makes you uncomfortable its not unreasonable to ask for a different Hematologist.
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